A national database for myelofibrosis

In 2017, Dr Nauman Butt was tasked with developing a national database for myelofibriosis.

"As a clinical researcher, I was very familiar with creating databases on different platforms, but these databases had very limited functionality in terms of representing data graphically and analytically. Whereas the Ledidi solution allows multiple users to work on one platform collecting a common dataset that can be analysed within the platform itself.

In 2017, I was tasked to develop a national database for a rare blood cancer, known as myelofibrosis. I realised that this was going to be a challenge, and so, when we moved on to the Ledidi platform, the functionality that we could produce by the click of a button, was more than we had managed to create in four years on the previous platform.

The versatility, the elegance with which the platform captures the data, which can then be analysed all in one application, was absolutely unique, and I have not seen anything like that on a research platform before."